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Friday, May 25, 2012

April Boughton

Here are a few frames from a story I did recently about Prader-Willi syndrome, a genetic disorder that stems from an abnormality of the 15th chromosome. The disorder has several symptoms, but the most prevalent is a constant sense of hunger. This really changes how people with the disorder fundamentally live. For April, it means she relies heavily on her parents, who are forced to lock away and tightly control their daughter’s food.

April Boughton takes a moment as she packs her lunch for the day on Monday, April 16, 2012, at her family's home in South Bend. Boughton, 22, suffers from Prader-Willi syndrome. The condition is characterized in part by a constant sense of hunger that can lead to extreme binge eating. Because of her condition, Boughton's meals are carefully planned out by her parents, who lock their food pantries and refrigerator. (James Brosher/South Bend Tribune)

April Boughton takes a moment as she packs her lunch for the day on Monday, April 16, 2012, at her family's home in South Bend. Boughton, 22, suffers from Prader-Willi syndrome. The condition is characterized in part by a constant sense of hunger that can lead to extreme binge eating. Because of her condition, Boughton's meals are carefully planned out by her parents, who lock their food pantries and refrigerator. (James Brosher/South Bend Tribune)

April Boughton attempts to blow a bubble as she competes in a game styled after NBC's "Minute to Win It" on Thursday, April 19, 2012, at Hannah and Friends in South Bend. Boughton, 22, comes to the facility a few times a week to play games and to groom horses at the stables. (James Brosher/South Bend Tribune)

April Boughton attempts to blow a bubble as she competes in a game styled after NBC's "Minute to Win It" on Thursday, April 19, 2012, at Hannah and Friends in South Bend. Boughton, 22, comes to the facility a few times a week to play games and to groom horses at the stables. (James Brosher/South Bend Tribune)

Individual pieces of April Boughton's lunch are laid out on a dining room table as April packs her lunch on Monday, April 16, 2012, at the family's home in South Bend. Boughton, who suffers from Prader-Willi syndrome, carefully packs her lunch each morning under close supervision from her mother, Jill. (James Brosher/South Bend Tribune)

Individual pieces of April Boughton's lunch are laid out on a dining room table as April packs her lunch on Monday, April 16, 2012, at the family's home in South Bend. Boughton, who suffers from Prader-Willi syndrome, carefully packs her lunch each morning under close supervision from her mother, Jill. (James Brosher/South Bend Tribune)

April Boughton makes her way down the Riverside Trail through Riverside Park on a bike ride with her father, John, on Friday, April 13, 2012, in South Bend. (James Brosher/South Bend Tribune)

April Boughton makes her way down the Riverside Trail through Riverside Park on a bike ride with her father, John, on Friday, April 13, 2012, in South Bend. (James Brosher/South Bend Tribune)

A lock secures kitchen cabinet doors on Friday, April 13, 2012, at the Boughton residence in South Bend. April Boughton, 22, suffers from Prader-Willi syndrome, characterized in part by a constant sense of hunger. Unchecked, the syndrome can lead to morbid obesity and Type 2 diabetes, according to the Mayo Clinic. (James Brosher/South Bend Tribune)

A lock secures kitchen cabinet doors on Friday, April 13, 2012, at the Boughton residence in South Bend. April Boughton, 22, suffers from Prader-Willi syndrome, characterized in part by a constant sense of hunger. Unchecked, the syndrome can lead to morbid obesity and Type 2 diabetes, according to the Mayo Clinic. (James Brosher/South Bend Tribune)

April Boughton, center, shares a laugh as she plays a dictionary game where teams are prompted to come up with fictional definitions for real words to throw off competing teams on Thursday, April 19, 2012, at Hannah and Friends in South Bend. (James Brosher/South Bend Tribune)

April Boughton, center, shares a laugh as she plays a dictionary game where teams are prompted to come up with fictional definitions for real words to throw off competing teams on Thursday, April 19, 2012, at Hannah and Friends in South Bend. (James Brosher/South Bend Tribune)

April Boughton moves a 4-year-old horse named Beauty back to her stall as Boughton works in the stables on Friday, April 20, 2012, at Hannah and Friends in South Bend. Boughton, 22, comes to stables to groom the horses once a week. (James Brosher/South Bend Tribune)

April Boughton moves a 4-year-old horse named Beauty back to her stall as Boughton works in the stables on Friday, April 20, 2012, at Hannah and Friends in South Bend. Boughton, 22, comes to stables to groom the horses once a week. (James Brosher/South Bend Tribune)

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